Sunday, January 30, 2011

The View part 2

Hello all.
I know everyone is wondering..who,what,how,why? Those questions are simple. The pictures below tell everything. We live,breath,eat and occasionally sleep Rett Syndrome. Our daughters are our hearts,our souls and everything we are. We raise money and spread awareness with every breath and every thought. We do nothing but take care of our girls and each other.
Rett Syndrome has not gotten this kind of media attention...ever. At least not since Julia Roberts was the spokeswoman a decade ago. Our girls...their fight has never had a whole segment. It happened very fast..the decision anyway but the fight to get it on air has been ongoing for a very long time.
We thank God for Manny and Stefanie having the connections to get us there. We are eternally grateful.
We were there because Stef and Manny needed us to be. We were there for our daughters and for their daily fight. We were there because this family was accomplishing something greater than anything we've been able to do with all our might and there was no way we were not going to be a part of it. We were there because we have the absolute honor of knowing and loving this family...

Love ALL these girls and women so much. In case you missed it or live in a part of the world that doesn't have it here it is....The GFam bringing Rett Awareness to the WORLD!