Monday, January 16, 2012

Scoliosis, Rett Syndrome and my Abby






Last year I told you all how Rett Syndrome Sucks. I told of our journey with Scoliosis and Rett Syndrome along with pictures of xrays. On these xrays you could see that Abby's curve had doubled in just a few months time. Despite the facts that we had enrolled her in Hippotherapy and upped her PT time outside of school her curve still doubled.

It took us several months to find a Chiropractor and Massage Practice that would take Abby on. With a huge discount and help from our church we were able to come up with a plan of treatment. Once again Thank You Fountain of Life and Nashua Baptist!

You can view the video of her progress here.

Never the less...it was not enough. Although we do intend to keep her in all her therapies we had to make the decision to brace Abby. It was not an easy one to make and almost everyone said the same thing..."Bracing doesn't work with Rettgirls. They don't tolerate it."

Here are some pics from Abby's brace fitting...that she is tolerating beautifully



When they first put it on. I was so upset but I knew if I cried she would too and she was being so good.
Here we go..she can sit up
Look at her Cheesing at the technician
On the way out. Sitting up as straight as can be....and yes..her legs really are that long!

5 comments:

datica5 said...

She's such a tough girl! She knows what's best for her body Mom. She also knows the decisions you make for her are to help her. You rock Abbygirl! You too Mom!

datica5 said...

She's such a tough girl! She knows what's best for her body Mom. She also knows the decisions you make for her are to help her. You rock Abbygirl! You too Mom!

Dr. Clayton Stitzel said...

Wow, Abby is a trooper. Most children don't have the inner strength to tolerate long periods of scoliosis brace treatment.

I'm not sure how many of you are aware of the recent scientific developments and breakthroughs that have or are recently occurring in the field of scoliosis treatment. Prognostic testing/technology in the way of genetic testing and blood tests are now able to determine which early stage scoliosis patients are most likely to experience severe curve progression. This presents a new and unique opportunity for early stage scoliosis intervention rehab programs to reduce and eliminate many of the "at risk" smaller curve cases before they progress to much more complex and difficult large curvature cases. It’s actually quite revolutionary and amazing.

Hendrik Imbier said...

How is Abby’s chiropractor treatment going? She’s such a sweet child. You should be strong for her, keep your head up at all times, and believed she will do well on every check up. Always keep in mind that whatever you are facing right now will soon turn into dancing. Yes, you read it right! You will overcome and you little girl will be healed.

neck and back chiropractic said...

she is very brave girl.This is pretty interesting. Inspiring, as well. Thanks for sharing such inspiring experience with us. Great blog, congrats.!