In her words

Unless you are just stumbling upon our blog you know that my 5 year daughter Abby has Rett Syndrome. A debilitating Neurodevelopmental disorder that robbed her of her almost every skill she had aquired when she was a toddler. Her regression started at 18 months old and most skills were gone within a week. All speech and purposeful hand use were the first to go. Abby has many issues including anxiety,breathing problems,gerd,sleep disorders,hypotonia....I would go on and on.

They call girls like Abby."Silent Angels" because of their sweet demeanor and their inability to speak. My angel is not so silent and I dont think she knows that we have no idea what she is saying. But she knows. I'm sure.

We got this video the other day when I took a break from kitchen cleaning because she was just letting the TV have it. She is such a doll.

Abby's birthday party finally

We had Abby's birthday party this past Saturday on her Daddy's birthday. She was very sick on her own birthday so we had to put it off for 6 weeks.Look at her face when she looks at her Dad. She adores him Her friends Alyssa and Madison helped her open her presents with her Dad Abby and Lyss having a moment
Madison helps Abby with everything. She is her helper and personal body guard.
She really wanted her Dora napkin!
Thanks to all who came even though it was put off for so long. We really appreciate you!

Hope for Hannah

Hope for Hannah. Hope for all our girls. Her story is our story

Abby loves Madison

I dont know if you guys remember Abby's best friend Madison but they were seperated this year and are going to different schools now. Try as we did we were unable to get them together over the summer. Last week Madisons Mom brought her over and didnt tell her who's door she was knocking on. We didnt tell Abby Madison was coming either. This is just a short clip of them together but is so so cute.

Some girls wont....

Cowgirl Abby

Yesterday was Cowboy day at Abby's school. We got some great pics and a couple of videos. We put her on her little horse and she was having such a great time. If I can figure out how too turn the other video around I will post it soon. I took it sideways for some reason.

You can tell how excited she was. I was so bummed that this wasn't a parent allowed event. I would havef loved to see all the other kiddos all dressed up. And yes. My Abby is the sweetest little cowgirl on earth!!!!!!!!

Dancin girl

Here is video of Abby dancin with her friend Casey ay last weeks Dancinforrett event.