Wednesday, April 21, 2010

Thank you Ashlynn

A lovely young woman who is the best friend of a girl with Rett Syndrome put together this video of some of our girls. Abby is the second girl shown. The song about did me in.
Many of you..and I was once one of you..know nothing about Rett Syndrome and have heard very little or nothing at all about it. Here are some facts before you view the video:

Rett Syndrome

QUICK FACTS:

Debilitating neurological disorder that predominantly affects females.

The most severe form of autism.

The leading cause of severe impairment in girls - most cannot speak,
walk or use their hands.

As prevalent as Cystic Fibrosis, ALS and Huntington's.

Another little girl is born with Rett Syndrome every 90 minutes.


There are just a handful of disorders that only affect females.
Breast cancer is the most prevalent. Rett Syndrome is just as
devastating, and affects a potential one in 5,000 girls.

Condemned to an entire lifetime of struggles, these girls have
been robbed of their ability to speak, walk, crawl, use their
hands. They depend on others for every part of their day.
Complications include seizures, sudden death in their sleep and
scoliosis.

Today, there is no cure. But Rett Syndrome is CURABLE!
Amidst the mass confusion going on within their central nervous
systems, they are smart, strong, and waiting patiently for us to
unlock the door to their recovery.

Researchers at Stanford, Albert Einstein, Emory, Case
Western, Harvard, and dozens of other top-notch institutions
are sinking their teeth into Rett Syndrome.

SCIENTISTS PROVE RETT SYNDROME IS REVERSABLE

Why?

Not only will their work help thousands of girls and women
worldwide, but their findings have a direct impact on research
on Autism, schizophrenia, bipolar disorder, Alzheimer's and
many other disorders.

In essence, our girls may hold the key to a cure for millions of
people suffering from dozens of problems.

Their cure is a HUGE cure!

Thank you for visiting this site and supporting this cause.
Together our girls will move mountains!
See article