The most severe form of autism.
The leading cause of severe impairment in girls - most cannot speak, walk or use their hands.
As prevalent as Cystic Fibrosis, ALS and Huntington's.
Another little girl is born with Rett Syndrome every 90 minutes
Some of you know that our Abby has gotten the dreaded flu bug. Darn piggies.
The first few days she was pretty miserable and we had to go ahead and reschedule her birthday party from Saturday the 26th to November 7th. Only because she could still be contagious for a while and we want to give her plenty of time to recover.
I finally got some smiles and movement from her this morning and wanted to share. I know every ones been pretty worried. She has been fever free since last night so hopefully she is on her way to recovery.
Keep the good thoughts coming!
As most of you know my Abby has Rett Syndrome. A debilitating disorder that at 18 months robbed her of her speech, purposeful hand use and physical free will. She has low tone,severe Apraxia and Ataxia. We have been working on ways to communicate with Abby and it has been a long road. We have started to introduce her to simple switches at home and she is adjusting just like the little trooper she is.
We are using this button to record messages back and forth from home and school. She can't always (mostly never) get her hands to do what she wants them to so she is adapting. Our best success with her has been eye gaze-paying attention to what she is looking at-but that kind of equiptment is ridiculously expensive.
Here we are going over what she did at school this day. You can see for yourself how amazing my little princess is. I am so proud of her!
Abby finally got to go back to the pool with her Heather. Heather has been her OT since Early Intervention First Steps. 18 months old. Heather was off for maternity leave and Abby spent that time not playing nice for Heathers replacement. Here she is doing her lap around the shallow kids pool before she went in. She was giggling the whole time!