Friday, November 27, 2009

Catching up

I have been such a slacker about keeping up the blog. I will try to better. We have been super busy with life. Abby is now getting therapy outside of school 3 times a week. All before school.We finally got a bath/shower chair for Abby. She's not so sure about it but it's great on my back. Like everything else labeled adaptive equipment it took forever for us to get and is ridiculously expensive but insurance finally came through! Thanks to the hard work at our doctors office! A bigger house and a bigger bathtub would be nice but I think we may have to pocket that one. Someday! Abby dancin in her chair to her new Wiggles Video!
Uncle Roman came for Thanksgiving. I dont think he likes the flash. Hee hee hee

Abby at her best friend Madisons birthday party at MCDonalds.

Madison the birthday girl. This kid is the sweetest thing in the world!

Rollin with her hommies.What's not cute about a girl in a pink fur pimp hat?

Me and my little buddy Joseph at Step up for Downs. I love him!

Abby telling her Daddy all about it at another birthday party.....
I will do my best at updating a little more often. Cant wait to get some new video of our girl. She is really gaining weight and looking good. She is even eating real food on occasion. We are so thrilled!

Friday, November 13, 2009

In her words

Unless you are just stumbling upon our blog you know that my 5 year daughter Abby has Rett Syndrome. A debilitating Neurodevelopmental disorder that robbed her of her almost every skill she had aquired when she was a toddler. Her regression started at 18 months old and most skills were gone within a week. All speech and purposeful hand use were the first to go. Abby has many issues including anxiety,breathing problems,gerd,sleep disorders,hypotonia....I would go on and on.

They call girls like Abby."Silent Angels" because of their sweet demeanor and their inability to speak. My angel is not so silent and I dont think she knows that we have no idea what she is saying. But she knows. I'm sure.

We got this video the other day when I took a break from kitchen cleaning because she was just letting the TV have it. She is such a doll.

Tuesday, November 10, 2009

Abby's birthday party finally

We had Abby's birthday party this past Saturday on her Daddy's birthday. She was very sick on her own birthday so we had to put it off for 6 weeks.Look at her face when she looks at her Dad. She adores him Her friends Alyssa and Madison helped her open her presents with her Dad Abby and Lyss having a moment
Madison helps Abby with everything. She is her helper and personal body guard.
She really wanted her Dora napkin!
Thanks to all who came even though it was put off for so long. We really appreciate you!

Friday, November 6, 2009

Thursday, November 5, 2009

Abby loves Madison

I dont know if you guys remember Abby's best friend Madison but they were seperated this year and are going to different schools now. Try as we did we were unable to get them together over the summer. Last week Madisons Mom brought her over and didnt tell her who's door she was knocking on. We didnt tell Abby Madison was coming either. This is just a short clip of them together but is so so cute.